LOCAL RI FARM BUILDS FIRST-EVER CONFIELD MAZE TO SUPPORT PEOPLE WITH BLEEDING DISORDERS: GET LOST TO GIVE HOPE
The New England Hemophilia Association (NEHA) and Salisbury Farm are proud to announce the grand opening of the first-ever cornfield mazededicated to the bleeding disorders community: Get Lost to Give Hope! OnSaturday, September 8th at 11:00 AM, NEHA will host a grand opening and ribbon cutting ceremony at Salisbury Farm for the Get Lost to Give Hope corn maze.
Salisbury Farm is the only farm in Rhode Island that has created their corn maze to generate awareness and support for a chronic condition. For over a year, NEHA andSalisbury Farm worked together on a campaign to raise awareness about bleeding disorders. These efforts have culminated in the Get Lost to Give Hope corn maze, a 5-acre experience that will educate the public about bleeding disorders with facts displayed throughout the maze. Please see attached for a recent aerial shot of the maze.
In addition to raising awareness, Salisbury Farm has also committed to supporting the bleeding disorder community by donating a portion of the corn maze sales to NEHA’s Emergency Assistance Fund. NEHA’s Emergency Assistance Fund is designed to help New England families that find themselves in financial crisis due to the costs associated with their bleeding disorder.
Treatments for bleeding disorders, such as hemophilia, are very expensive. The average cost of treatment for a person with hemophilia is in the neighborhood of $350,000 per year. If a person gets a complication called inhibitors, it can cost more than a million dollars annually. NEHA’s Emergency Assistance Fund may be used to cover expenses like utility bills, transportation to and from medical appointments, rent, and food. Over the past five years, NEHA’s Emergency Assistance Fund has provided over $40,000 to families experiencing financial hardships. Every dollar that is contributed from the Get Lost to Give Hope maze will go directly to families with bleeding disorders in need.
Founded in the 1800’s in Johnston, Rhode Island, Salisbury Farm has been owned and operated by five generations of the Salisbury Family. In 1998, Stephen Salisbury designed the first “Corn Field Maze” in New England and he and his brother Keith have been designing and constructing a new maze every year since. This year, inspired by the stories of local families struggling with bleeding disorders, the Salisbury Family dedicated their maze to the New England bleeding disorder community.
About the New England Hemophilia Association
The New England Hemophilia Association (NEHA) is dedicated to improving the quality of life for persons with bleeding disorders and their families through education, support and advocacy. NEHA has assisted and advocated for all persons with inherited bleeding disorders in Connecticut, Massachusetts, Maine, New Hampshire, Rhode Island, and Vermont since 1957.
About Bleeding Disorders
Bleeding disorders are a group of conditions in which a person’s blood does not clot properly. Improper clotting can cause heavy and/or prolonged bleeding after an injury, surgery, or during menstruation. Bleeding disorders are usually genetic and are not contagious. Bleeding disorders can be very serious and often require treatment and lifestyle modification. Although there are many different types of bleeding disorders some of the most common are: hemophilia A (factor VIII deficiency), hemophilia B (factor IX deficiency), hemophilia C (factor XI deficiency), and von Willebrand disease (vWD). There is no cure for hemophilia or vWD.
In Rhode Island, there are an estimated 100 people living with hemophilia and about 10,000 living with other types of bleeding disorders.
About Salisbury Farm
Founded in the 1800s Salisbury Farm has been owned and operated by five generations of the Salisbury Family. In its earliest stages, Salisbury Farm supplied hay for a nearby stagecoach line. During the next century, Salisbury Farm became a full-time dairy farm. It remained a dairy farm until the mid-1970s when Roger Salisbury turned the farm operation over to his son Wayne. In 1982 Stephen Salisbury decided to plant 500 strawberry plants for an FFA project with the help of his father and family.
This project was a success and since that time Wayne has expanded the operations of the farm to become as you see it today – hayrides, pumpkins, corn, raspberries, mums and seasonal decorations, as well as strawberries. In 1998 Wayne’s son Stephen designed the first “Corn Field Maze” in New England. Stephen’s brother Keith joined the effort by helping with the maze construction and developing the farm website. For 20 years the brothers have con-structed our farm’s largest attraction. Wayne Salisbury is the fifth generation to own and operate Salisbury Farm. His sons and their children will be the sixth and seventh generations to carry on the Salisbury Farm legacy.